Oh lifes fast balls

So, yesterday Ethan, me and Nina Coco went to meet with the cochlear implant team.....We're going through with it! They said that its going to be a bit more difficult to get the insurance company to approve it because he (Ethan) gets good benefit from his hearing aids....just not enough... but with all of our strong personalities we can make it happen.

He has a great vocabulary-he speaks well, but only familiar listeners actually understand him....(his own father has me interpret for him-which is irritating!) I always say he can have a billion words but if people don't understand him then its useless....He's made wonderful progress-He's so smart!

For the past month or so I kept saying it will help him, it will make school and social settings that much easier on him--convincing myself that I was OK with it, but in the back of my head I was hoping they would say that he wasn't a candidate!


When they were doing all the testing I was holding him...I could feel his heart beat pumping so hard and he was holding his breath just to try to hear what was going on.....It broke my heart....He's working so hard to get whats going on, No wonder why at the end of the day hes SO Pooped!

We had genetic testing done when I was pregnant with Kiley. I was told that although the hearing loss is genetic due to the connexion 26 gene mutation that it wasn't progressive....yesterday I was told that it is and they showed me his past audio grams that proved that in fact he has a progressive loss..

Next week they're testing Kiley...I highly doubt shes a candidate for an implant at this time. But who knows I thought Ethan would never be!

We're going to start video taping Ethan through out this whole process so that he can see why we decided to take this route....I hope it shows that we only wanted our children to have access to to every opportunity that we ALL naturally get...I want them to know that we love them and want NOTHING BUT THE BEST FOR THEM!